The First European Days of Albinism will take place in Paris on Saturday 27th and Sunday 28th October 2012, organized by Genespoir, the French Association in support of persons with albinism. This conference will gather representatives of European organizations of people with albinism, doctors and physicians specializing in fields related to albinism and scientists conducting research on albinism. For the first time, these three major actors of the European world of albinism will have the opportunity to meet, exchange and discuss potential future collaborations. This conference should allow the development of a European plan of action to help people with albinism. It should lead to:
•Developing programs that explain albinism to the general public
•Building a scientific and medical state of the art of albinism
•Improving clinical and molecular diagnosis
•Supporting therapy development programs
Conference place: “Plateforme maladies rares“, Hôpital Broussais, 96 rue Didot, 75014 Paris.
Organizing commitee: Genespoir, French organization of albinism
Robert Aquaron, Marseille, France
Benoît Arveiler, Bordeaux, France
Glenn Jeffery, London, UK
Barbara Käsmann-Kelner, Homburg, Germany
Lluis Montoliu, Madrid, Spain
Maria-Vittoria Schiaffino, Milan, Italy
Alain Taïeb, Bordeaux, France
Contact address: firstname.lastname@example.org
In addition to the indicated researchers, from the scientific committee, it is confirmed the attendance as invited speakers of Enrico Surace (TIGEM, Naples, Italy) and Brian Brooks (NIH, Bethesda, MD, USA), responsible of the two pioneer experimental therapeutic attempts to potentially treat some types of albinism.
Don’t miss this opportunity to visit Paris to discuss about albinism!